Showing posts with label Inspiring. Show all posts
Showing posts with label Inspiring. Show all posts

Thursday, April 2, 2015

Subtle Signs of Autism 0-7 years old: VIDEO

In honour of World Autism Awareness Day, here is a video I found called:

'Sublte (sic) Signs of Autism 0-7 years old'. 

People often ask me these questions about my son (Rafael, age 7):
- How did you first know your son had autism?
- What were the signs? How did he act which told you he had autism?- At what age was he diagnosed?
- How has he progressed over time?
- How is he doing at school now? (my son is in year 2)


While every child 'on the spectrum' is different, this video gives some good insight into the profession a child with autism can make.

Says the video description:

"This video shows the subtle signs of autism from one child as he ages and his tremendous growth from years of therapy."

Watch and tell me what you think (and light it up blue today for our beautiful kids with autism and Aspergers:




Monday, December 15, 2014

'A Different Brilliant': Aspect Autism - VIDEO

(As appeared on sister blog page 'Josie's Juice'). If this post had a 'like' button, I'd hit it a million times over. If only just for the fantastically brilliant header just above.
Aspect has released a positive awareness campaign on its Facebook, Twitter and LinkedIn pages called, 'a different brilliant.' The campaign includes a centrepiece film and microsite (www.adifferentbrilliant.org.au), which celebrates our differences by introducing viewers to seven quirky real-life characters on the autism spectrum in a beautifull shot, positive and inspiring montage. 
Seven real-life ASD heroes tell the story
The captivating short film captures the stories of seven unique individuals as told by them, their friends, families and communities:
CALLUM THE PUZZLE WHIZ. 14 year-old Callum is enthusiastic about puzzles and completes them in record time without looking at the finished image on the box. He represents the unique talent for sorting and visual problem solving some people on the spectrum possess.
CHELSEA THE DRESS-UP SUPERHERO. Like many girls her age, four year-old Chelsea loves pink, dressing-up, and playing with Barbies™. But thanks to her unique way of expressing herself, rather than dressing up as a fairy like all the other little girls going to a birthday party, she arrives in a self-designed superhero outfit. Those with highly sensitive nerve endings as part of their ASD often delight in specific fabrics and textures that are gentle and familiar to their touch.
SUPERMARKET SURVIVAL, NATHAN. For an ASD child with super-hearing powers, like seven year-old Nathan, supermarkets are a deafening cacophony of disharmonious sounds: buzzing fridges, in-store announcements, checkout noises and errant trolleys. A two-year old is shown sitting in a trolley with ear defenders as an example of how many children on the spectrum with auditory sensitivities, like Nathan, bravely tackle the experience.
SCHOOL BOYS AT HEART, BEN. We see 10 year-old Ben () at the school gates as other children come and go around him. Both he and his brother, Nathan (7) attended Aspect schools and have now successfully transitioned to the mainstream education system. The scene reminds us that people with autism don’t look any different – they could be any school friend or classmate; but take the time, and you’ll discover a different brilliant.
ALEXANDRA, THE DREAMER. Sometimes people on the autism spectrum have trouble with communication, social interaction and sensory overload. The story of 29 year-old Alexandra is told in a café scene. She gazes out the window while conversations happen around her, brilliantly finding a “safe place” in her own mind to block out the overwhelming nature of her surroundings, but eagerly joining in the conversation when a friend asks her a direct question.
ROBBIE, THE VISUAL ARTIST. Passionate photographer and business owner Robbie is in his early 20s. His story is told creatively via a class field trip montage. As others take similar shots to each other, Robbie sees the world through a different brilliant lens.
CAMERON THE WORKER. Cameron is in his 40s and an active member of the workforce. Aspect supports both Cameron and his employer via the Aspect Capable specialist employment service, which offers person-centred employment training and support to jobseekers with ASD, and their employers through coaching, mentoring, job preparation and training.
“So often wonderfully talented, brilliant people with autism spectrum disorder are overlooked by society as being odd, or quirky, or obsessive. With our a different brilliant campaign, we hope to inspire a wider understanding and respect for how people on the autism spectrum are just like you and me, in many ways, but with their own uniquely brilliant take on the world,” says Adrian Ford, CEO of Autism Spectrum Australia (Aspect).
The 'a different brilliant' short film was released to the public via social media today, on Thursday 13 November on the Aspect Facebook page facebook.com/AutismSpectrumAustralia, as well as via Twitter and LinkedIn.
The public is encouraged to ‘like’ and ‘share’ the 'a different brilliant' short film with the hashtag #adifferentbrilliant and include links to the a different brilliant microsite in any social media posts: www.adifferentbrilliant.org.au/
And so, I am doing my part, to honour my beautiful son Rafael, who is six, and (to borrow a line from one of the best films on the planet, and one of my fave flicks ever, 'Temple Grandin') "different, not less", here is this exceptional video:




Thursday, October 2, 2014

Australian Story: 'I am Jack' - ABC TV

Screening as part of ABC 'Mental As' – a week of distinctive programming on TV, radio and online for Mental Health Week - comes this ep of 'Australian Story.'

It's the story of radio and TV personality Ian ‘Dano’ Rogerson and his wife Nicole, who gave up their home, careers and an exciting lifestyle for the love of their son, Jack.



Ian Rogerson is a successful national broadcaster and media star who in the 1980s was best known for his professional partnership with Jonathan Coleman. As ‘Jono & Dano’, the pair had a 10-year run with top-rating radio shows and a string of national television programs. 

While Jono Coleman went on to forge a successful career in Britain, Ian Rogerson all but disappeared from the entertainment scene for more than a decade.

Five years ago Australian Story filled in the missing years.  Ian Rogerson had thrown in his career – “career suicide”, according to many in the industry – to care for Jack.

Diagnosed with autism as a toddler, Jack Rogerson was hyperactive, could barely speak and was unable to express ordinary affection. Like many parents of autistic children, the Rogersons soon discovered there was little help available. But they were determined to do whatever they could to enable their son to lead a mainstream lifestyle.

The turning point came when they met Elizabeth Watson, a therapist pioneering a treatment called Applied Behaviour Analysis (ABA). 

When we first visited the Rogersons, Jack had just completed his primary school education.  Now, five years on, the family’s determination is being richly rewarded.

At 18, Jack has recently graduated from a mainstream high school and is looking forward to a career in the hospitality industry.

In this program, the Rogersons candidly discuss the highs and lows of Jack’s life and explain how he has been able to reach his full potential. 

"Jack’s progress shows what is possible," says Nicole Rogerson, who is now CEO of Autism Awareness Australia and also runs an early behavioural intervention centre in Sydney to help other children with autism.

"We know that kids in Australia, one in a hundred of them, have Autism Spectrum Disorder. The reality is the vast majority are not getting anywhere near best practice guidelines for treatment of Autism. So unless the government makes a genuine investment in this area, so many children are not going to reach their best outcome and I think that’s a tragedy." 
  
Also featured are the Rogersons’ younger son, Tom, high school director of students Adam Lewis, and family friends Angela Catterns and Jonathan Coleman, together with therapist Elizabeth Watson.

'Australian Story – I am Jack' will screen on Monday October 6, at 8pm on ABC.

UPDATED: if you missed the episode tonight, you can watch the whole ep right here.

Note from ABC: This episode was broadcast at 8:00pm on Monday 6 October 2014. It was published 59 minutes ago and is available until 9:01pm on 20 October 2014. File size approx. 144 MB

 



Wednesday, July 16, 2014

Daryl Hannah on her Asperger's: The Big Interview - Dan Rather VIDEO


'THE BIG INTERVIEW' is a new series which features interviews with some of the most well-known talent from the entertainment industry.

Recently, Daryl Hannah opened up for the first time on her struggles with Asperger's Syndrome (a condition similar to autism).

In her first television interview about her affliction, she discusses how her family helped her deal with it when she was a child.

She also discusses her life with the late John F. Kennedy Jr.

"Daryl Hannah: The Big Interview" aired on US TV on June 23 on AXS TV.





Wednesday, July 9, 2014

Michael Bublé's message to 6 year old fan with autism

Super cute video by the super cute Michael Bublé  for a super cute fan… who has severe autism.

Says the YouTube description:

"Griffin is a 6 year old boy with severe Autism who lives in Calgary, AB. He has a passion for music, and has acquired an incredible love for Mr. Buble. He asks for 'Michael Buble' throughout the day, and his therapists use Mr. Buble's videos as rewards for good work."




Thursday, April 10, 2014

Carly Fleischmann: 'Autistic Girl Expresses Unimaginable Intelligence' - VIDEO

A friend of mine alerted me to this amazing video the other day. I am sure I have watched it before, when I was new to the autism journey. But this time, it had an even greater impact. It has more meaning now. I understand what milestones mean, more than ever.

Watch as Carly Fleischmann finds her voice:


Carly describes herself like this on her web page:

"My name is Carly Fleischmann and as long as I can remember I’ve been diagnosed with autism.
I am not able to talk out of my mouth, however I have found another way to communicate by spelling on my computer. (and yes that is me typing on the computer by myself)
I used to think I was the only kid with autism who communicates by spelling but last year I met a group of kids that communicate the same way. In fact some are even faster at typing then I am.
Last year a story about my life was shown on ABC news, CNN and CTV here in Canada.
After my story was played I kept on getting lots of emails from moms, dads, kids and people from different countries asking me all sorts of questions about autism. I think people get a lot of their information from so-called experts but I think what happens is that experts can’t give an explanation to certain questions. How can you explain something you have not lived or if you don’t know what it’s like to have it? If a horse is sick, you don’t ask a fish what’s wrong with the horse. You go right to the horse’s mouth."
You can follow Carly on Facebook here.


Wednesday, April 2, 2014

'World Autism Awareness Day' 2014

It's 'World Autism Awareness Day' today!

In Australia, you will see participation in 'Light It Up Blue' - a global campaign that sees thousands of iconic landmarks, cities and towns around the world turn blue on April 2 to recognise World Autism Awareness Day.




The campaign highlights the pressing need for greater public education and awareness of autism in our community.

This Australian organisation is proud to have initiated and hosted Australia’s participation in this campaign for the past three years and this year their aim is to see all of Australia go blue on April 2.

Do your bit by wearing blue today - it'll be a nod to those around you who you know love someone with autism.

Visit www.lightitupblue.com.au for more info one how you can get involved

Want to know more about autism?

Watch this.

And this:



What does this day mean to me? Just knowing that you know about it, and that you support me and my son… that's enough. That, and knowing that some days, it's bloody hard. No sympathy required. Just knowing that if you see someone in a supermarket having a meltdown, down assume, don't judge… just be understanding. THAT'S autism awareness for me. And for my son.

Wednesday, February 12, 2014

Mum creates birthday Facebook page after son says he's friendless

This is pretty darn cool.

Ten year old Colin, from Michigan USA, told his mum not to throw him a birthday party because he has "no friends." Here is Colin:



Colin, who has Asperger's, told his mother there would be no point in throwing a birthday party because all of the kids at school "don't like me" and "make fun of me."

That's when Colin's mum came up with a special surprise. She created a Facebook page called "Happy Birthday Colin" where people can leave birthday messages for him, and it's getting lots of attention, 'likes', and the most sensational messages - even photos - the world over (I even spotted one from Sydney!).

For more info, click here.

And to leave Colin a message on that Facebook page, click here.

Tuesday, January 14, 2014

Dear 'Daddy' in Seat 16C Flight 1850 From Philly: VIDEO and letter

Mum boards flight with three year old daughter who has autism.  Expects judgement.
Instead, get this (this is her thank you letter the man who happened to sit beside her and her gorgeous daughter, below:
Dear "Daddy,"
I don't know your name, but Kate called you "daddy" for the entire flight last week and you kindly never corrected her. In fact, you didn't even flinch as you could probably tell that she was not confusing you with her own "daddy," but instead making a judgment regarding your level of "safety" for her. If she calls you "daddy" then you better believe she thinks you are alright.
I sat Kate, my 3-year-old who has autism, in the middle seat knowing full well that there would be a stranger sitting next to her for the duration of this flight. I had to make a quick decision and based on her obsession with opening and closing the window shade, I figured she might be less of a distraction if she sat in the middle. I watched the entire Temple basketball team board the plane, and wondered if one of these giants might sit by Kate. They all moved toward the back. She would have liked that, she would have made some observations that I would have had to deal with, but she would have liked those players. I watched many Grandmotherly women board and hoped for one to take the seat but they walked on by. For a fleeting moment I thought we might have a free seat beside us, and then you walked up and sat down with your briefcase and your important documents and I had a vision of Kate pouring her water all over your multi-million dollar contracts, or house deeds, or whatever it was you held. The moment you sat down, Kate started to rub your arm. Your jacket was soft and she liked the feel of it. You smiled at her and she said: "Hi, Daddy, that's my mom." Then she had you.
You could have shifted uncomfortably in your seat. You could have ignored her. You could have given me that "smile" that I despise because it means; "manage your child please." You did none of that. You engaged Kate in conversation and you asked her questions about her turtles. She could never really answer your questions but she was so enamored with you that she kept eye contact and joint attention on the items you were asking her about. I watched and smiled. I made a few polite offers to distract her, but you would have none of it.
Kate: (Upon noticing you had an iPad) Is dis Daddy's puduter?
You: This is my iPad. Would you like to see it?
Kate: To me?????? (I know she thought you were offering it to her to keep)
Me: Look with your eyes, Kate. That is not yours.
Kate: Dat's nice!
You: (Upon noticing that Kate had an iPad) I like your computer, too. It has a nice purple case.
Kate: Daddy wanna be a bad guy? (She offered shredder to you and that, my friend, is high praise)
You: Cool.
The interaction went on and on and you never once seemed annoyed. She gave you some moments of peace while she played with her Anna and Elsa dolls. Kind of her to save you from playing Barbies, but I bet you wouldn't have minded a bit. I bet you have little girls, too.
Not long before we landed Kate had reached her limit. She screamed to have her seatbelt off, she screamed for me to open the plane door and she cried repeating, "Plane is cwosed (closed)" over and over. You tried to redirect her attention to her toys. She was already too far gone at this point, but the fact that you tried to help your new little friend made me emotional.
In case you are wondering, she was fine the moment we stepped off the plane. Thank you for letting us go ahead of you. She was feeling overwhelmed and escaping the plane and a big, long hug was all she needed.
So, thank you. Thank you for not making me repeat those awful apologetic sentences that I so often say in public. Thank you for entertaining Kate so much that she had her most successful plane ride, yet. And, thank you for putting your papers away and playing turtles with our girl.
Here's a video on her experience:

Sunday, December 8, 2013

Susan Boyle: Diagnosed with Asperger's

Susan Boyle - the Scottish singer who shot to fame on the TV show 'Britain's Got Talent' in 2009 - has revealed she has been diagnosed with Asperger's syndrome, a high-functioning form of autism.


Susan told Britain's Observer newspaper she was diagnosed a year ago and told of her relief after years of bullying for her learning difficulties.

The now 52-year-old says: "It was the wrong diagnosis when I was a kid."

She adds: "I was told I had brain damage. I always knew it was an unfair label. Now I have a clearer understanding of what's wrong and I feel relieved and a bit more relaxed about myself."

Susan's rendition of 'I Dreamed A Dream', from the musical 'Les Miserables' went viral - it has garnered nearly 140 million views on YouTube. She has since recorded four - yes, FOUR! - hit albums.

Boyle's quirky sense of humour and golden voice won her legions of fans, but her rapid rise to fame and the huge press attention drove her close to breakdown.

More about Asperger's: it affects communication and social interaction. Sufferers have difficulty picking up on social cues and gauging appropriate behaviour.

Susan was, sadly, bullied throughout her school years and nicknamed "Susie Simple" by her classmates.

Susan has recently had tests which have revealed she has above-average intelligence, she tells the Observer.

"I was told my IQ was above average," she said.

Susan says her Asperger's diagnosis would not make any difference to her life: "It's just a condition that I have to live with and work through".

"I think people will treat me better because they will have a much greater understanding of who I am and why I do the things I do."

Currently, Fox Searchlight is reportedly interested in making a film of Susan Boyle's life.

Saturday, June 29, 2013

'The Real Housewives of New Jersey': Jacqueline Laurita's son says "I love you"

Okay, yeah.

I like reality TV.

I am, I will admit, maybe a little over it of late. Like, say, 18% less satisfied than usual.

And that defintely goes for my affection for 'The Real Housewives' franchise.

However! Sometimes, a clip from the show may surprise me with an actual message beyond demonstrating privileged lives and/or living beyond your means.

Like this beautiful clip from the current season of 'The Real Housewives of New Jersey', which features cast member Jacqueline Laurita's young son - and the first time he says 'I love you' to his mother in a very long time (he has regressed - he has said those precious words in the past).

It is touching and sweet and reminds parents of neurotypical kids why parents of kids with autism rejoice SO much in the little things. It tears me up every single time.

Watch the clip here.

What has your child with autism done recently that makes you jump for joy?


Wednesday, February 20, 2013

Carly's Café: Carly Fleischmann's View Of Autism

This experience is viewed through the eyes of Carly Fleischmann, a 17 year old girl living with non-verbal autism.


It's based on an excerpt from the book 'Carly's Voice: Breaking through Autism', and it explores how - for someone with autism - a simple act like going for a coffee can descend into chaos.

'Carly's Café' was developed as an interactive video that allows the user to experience autism from the inside out.

Visit http://www.carlyscafe.com/ to enjoy the full experience.

UPDATED: 

Carly's Café has just been announced as silver medal winner at the Cannes Lion Festival with this film.


Thursday, January 3, 2013

'My Name Is David' - Autism Viral Video. Watch.

'My Name Is David' is a powerfully simple animated short film from one of the animators of 'Robot Chicken', Matt Manning, for the Autism Speaks site.

It depicts a young student's speech to his fellow classmates about his autism.

The short film features the actual words and voice of the author of the speech - 14 year old David Shapiro Sharif.

David's speech does an exceptional job in not only educating kids and adults about autism [in my opinion, educating adults of school-aged kids is just as important], it also gives a voice to millions of autistic kids around the world. I love it.

Watch. And share:



How wonderful was that? If you don't have an autistic child, did you come away feeling like you know much more about autism?

And if you do have an autistic child, don't you feel somehow validated on their behalf?

For more on Autism Speaks, click here.


Monday, August 27, 2012

'Temple Grandin': closing scene. Tears - and hope.

I have been 'dying' to post this clip, from the movie 'Temple Grandin'.

I have been waiting for the right time. When my son graduates from pre-school? Or kindy, or... I don't know Year 6... or perhaps high school or university?

Turns out there is no right time. It's now.

Because with each and every Occupational Therapy session [every fortnight], and every weekly playgroup at Learning Links, and several hour-long meetings each month about setting new goals for Rafael, I realise we are inching closer to a day when Raf will stand up and declare himself like this. I don't know how he will do it, I don't know what it'll look like, but I do know one thing: I will be as moved as Julia Ormond [playing Temple Grandin's mother] is:

Watch the clip and you will see why it moves me - no, makes me shed floods of tears - each and every time.